Hello, dear friends and family members,
Perhaps we started celebrating a bit too early. I had a very good weekend and Monday dawned as an absolutely glorious spring day. I may have overdone it with several walks and some shopping that day. By Tuesday morning I felt miserable, so much so that the lab techs at St. Vincent's were trying to get me to take a wheelchair out to the car after a routine lab visit. It wasn't the blood draw itself, because I was fading fast during the wait and they could tell. They brought me water and offered to let me lie down for the draw. Besides being in a lot of pain, I felt light-headed, weak, shaky and generally crummy all over. We finished the blood draw and went ahead with our visit to the gastroenterologist, who's office is in a medical complex just down the street from the hospital. From there we came home and I went right to bed. I am still in a lot of pain and it seems like the narcotic is no longer doing its job. Anyway, I spent most of yesterday afternoon and, except for trips to the bathroom and a light breakfast, all of today in bed. This is the first time that I have actually been bedridden since treatment started. It may be something unrelated, but it seems to be a composite of all the minor symptoms I felt at one time or another during treatment. The doctor warned us that it would take some time to recover and he may be right.
The visit with the gastroenterologist went well. He was the most straightforward and compassionate doctor I've seen since we've been here. He had obviously read over all the notes from Dr. Hansen, my radiation oncologist, and was very familiar with my case history. Unfortunately, he had no immediate solution. He is waiting on the results of a three-day bowel sample and has scheduled a flex sigmoidoscopy for April 20. That is the earliest that he is available to do the test at the same time there is space in the Medical Procedures Unit at the hospital. Because of the level of pain, the procedure also needed to be coordinated with the availability of an anesthesiologist. What was that I said a couple of blogs back about big-city health care?
I bring all of this up not for sympathy, but because all of the prayers and positive vibes worked so well during the treatment, I wanted to let you all know that we are not out of the woods yet and that they are still very much needed. Obviously what I thought about a short recovery and what my body is telling me are two very different things. Please keep us, and little Rowan, in your prayers until we get our respective medical conditions sorted out.
Shalom,
Barry and Kathy
Hello Ole Buddy and his Great Wife.
ReplyDeleteYou guys are in my thoughts (and prayers) every day. Given my great religious capital in prayer category, it may explain he why behind this humbling experience. What a time of bitter-sweet events -- family and friends first. The rest is just stuff. Joe
Barry and Kathy,
ReplyDeleteThere are times when good words fail and this is one of those times. I can promise we are thinking good thoughts and sending as much positive energy to you (and Annabelle) as we can. We hope this is the darkest hour before the dawn. The candor with which you share your experience is inspiring; though seriously, it's ok to inspire us a little less!!!
It's spring, and life is bursting all around you. The earth is telling you it's ok to rest a little, because she has energy now and a job to do. Take things easy, and heal.
To be clear, I meant not that you should not use candor, but that I wish your trials were not so much the stuff of inspiration. It didn't quite come out the way I intended but the sentiment is there.
DeleteNot to worry, Cindi. I knew exactly what you meant. The pain is down somewhat tonight. Hydration and light snacks throughout the day have also helped. I'm not yet up and around, but am feeling much better.
ReplyDeleteBarry and Kathy,
ReplyDeleteYou are all in my thoughts, Rowan too. I am sorry for the backlash you are continuing to deal with. I was thinking that maybe this is your body, stress letting go...maybe something else brewing in your system, but it sounds like the tests will play out and have a more concrete answer for you. It is so difficult to know that you are going through this...I hope that you are able to sleep and that the pain can be managed with the meds.
You are in my thoughts always.
Cindy
Grrrr! Hope this sidestep cools it's heels soon. Enough already!
ReplyDeleteWe are always thinking of you and sending you now our super powerful thoughts X3 for healing and feeling better. The sun is coming!
ReplyDeleteLove to you and all the family,
Kelly Jim and Liam
Dad,
ReplyDeleteThanks for rallying to wish Caden "happy birthday" yesterday. It meant a lot to all of us. Sending love and positive energy your way.
<3 M
It was our pleasure and good medicine! He was so entertaining--piano and all! Thank YOU!
DeletePraying!
ReplyDeleteThank you, Everyone!! Relief is on the horizon, as long as we keep on top of the pain and hydration and keep activity to a minimum. It's hard to keep a good, project-oriented man 'down'!
ReplyDeleteHugs to All!
Kathy
You and your family are in my prayers every day. God bless.
ReplyDeleteBarry and Kathy,
ReplyDeleteAs we got off the plane yesterday Robert was immediately asking how you were. He and Tim had talked and someone had seen your blog and they knew that we had been the most recent P-villers to see you guys. Know that we all are "ever vigilant" with concern and praying for a speedy recovery.
I am thinking along the lines of Cindy, you know that in times of stress we can hold up and be strong and get through everything and when it is over we let down and we have to just get caught up. Kind of like a tsunami that hit after the earthquake,hit with full force and knocked you down. Radiation is exhausting , and your body needs time to heal from it.I'm glad you are better with some rest, light foods,and fluids. When you feel good it is so hard to not 'do the max'like before treatment.And besides what is there to watch on tv anyway.!!!What's the old saying, everything in moderation.If we could just tell our brains that, right.
Of course, I am sure your doctor has looked at all the immediate concerns, possible infection, which they are working on with the 3 day program, and the sigmoidoscopy will check up on everything.Did they up your pain meds?
Give Rowan a snuggle and a kiss for us. Went for a brief walk with Tessa and Cedar yesterday and they stayed for dinner ( after his 2 month shots). I was so ready for my baby fix, they are just so sweet. Take care and we will keep tabs on your blog. Told Kris Norosz I would send the site to her. \
Talk soon, Joyce
Joyce,
ReplyDeleteGreat analogy!! One person also mentioned that, since we can't see it, we don't know/understand what the damage is. Have to change the mentality of "exercise to heal" to "heal, then exercise". Yes, moderation. Didn't Up pain meds. Today (Easter) things are on an even keel.
Only about two and a half weeks of Rowan snuggles, so we're on it!
Thanks, and have a great week!